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February 14th – Epilepsy Awareness Day

February 14th is a unique day – in addition to the traditional celebration of Valentine’s Day, it is also recognized as Epilepsy Awareness Day. This symbolic observance coincides with the feast of Saint Valentine, the patron saint of lovers, who, according to one legend, also cared for people suffering from epilepsy, sometimes referred to as the “Saint Valentine’s disease.”

The purpose of this day is to raise public awareness about epilepsy, one of the most common neurological disorders. In Poland, approximately 400,000 [1] people live with epilepsy, and around 27,000 [1] new cases are diagnosed each year, highlighting the importance of education on recognizing symptoms and providing first aid during a seizure.

Many well-known artists and historical figures have struggled with epilepsy. Ludwig van Beethoven, Fyodor Dostoevsky, and Napoleon Bonaparte are just a few of the notable individuals believed to have faced challenges related to the condition [2].

Epilepsy Awareness Day is not only an opportunity for education but also for fostering a supportive and understanding community for those living with epilepsy. Educational initiatives, awareness campaigns, and charity events serve as reminders that this condition does not have to be a barrier to achieving dreams and life goals. Thanks to advancements in treatment and improved diagnostics, people with epilepsy can expect a better quality of life and greater participation in society.

[1] Source: Państwowy Fundusz Rehabilitacji Osób Niepełnosprawnych

[2] Source: Gov.pl

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AOEC 2025: registration is open

The 15th Asian & Oceanian Epilepsy Congress is just around the corner! Taking place in New Delhi, India, from 20–23 February, this event promises four days of engaging sessions, workshops, and lectures.

Register now to take advantage of the regular fees before they increase on 7 February. For those unable to attend in person, on-demand registration is available, offering access to the congress content online.

Explore the programme available on the ILAE website.

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ILAE-YES: educational needs

The ILAE Young Epilepsy Section (ILAE-YES) Task Force invites you to participate in a survey designed to evaluate the educational needs of young professionals working in epilepsy across all ILAE regions.

Submission deadline: December 31, 2024.

For access to the survey and additional details, please visit the ILAE website.

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ILAE survey

The ILAE is continuing to collect responses to a survey on the neuropsychological aspects of epilepsy through the end of October.

We encourage you to participate in the survey, which should take approximately 10 to 15 minutes to complete.

For more information, visit the ILAE website

Survey

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Epilepsy Curriculum for Neurosurgeons

The Epilepsy Surgery Education Task Force, part of the International League Against Epilepsy’s (ILAE) Surgical Therapies Commission, has created a competency-based curriculum on epilepsy tailored for neurosurgeons. This curriculum is intended to serve as a foundational guide for epilepsy surgery training centers around the world.

All interested individuals are invited to take 10 minutes to share their feedback on the proposed program.

We encourage you to submit your comments and kindly request that you share this information with your colleagues. Your input is highly valued.

For more details, visit the ILAE website.

To participate in the survey visit this link.

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ILAE Sections

The ILAE invites you to join the “ILAE Sections” working groups. Participation is free and focuses on the following specialized areas:

Neurotechnology in Epilepsy Section
Nursing Section
Pharmacy Section
Social Work and Social Services Section
Young Epilepsy Section (YES)

For more details, please visit the ILAE homepage and explore the dedicated section.

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WHO IGAP Implementation Toolkit

The World Health Organization (WHO) has released the publication “Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders 2022-2031: Implementation Toolkit,” available for download at this link. This publication offers guidance on implementing the strategic goals of the Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders (IGAP).

IGAP’s strategic goals encompass areas such as policy and governance, effective and timely diagnosis, treatment and care, promotion and prevention, and research, innovation, and information systems.

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Epilepsia Open® special issue

Epilepsia Open® is now accepting submissions for a special issue focused on neurotechnology and artificial intelligence in epilepsy research.

Emerging technologies can significantly enhance the diagnosis and treatment of epilepsy, addressing challenges such as complex differential diagnosis, the dynamic nature of the disease, the need for long-term monitoring and treatment, unpredictable morbidity and mortality, frequent comorbidities, and various personal and social impacts.

For further details, please visit the ILAE website.

Deadline for expression of interest to submit: 12 September 2024

Manuscript submission deadline: 31 December 2024

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17th Baltic Sea Summer School on Epilepsy

We would like to invite you to the upcoming summer school on epilepsy, entitled “17th Baltic Sea Summer School on Epilepsy.” The event will be held online in the afternoons of August 15, 16, 26, 28, and September 2, 2024.

The summer school is primarily aimed at young medics, scientists, and doctoral students, generally under 40 years of age.

All topics will be related to the ILAE Academy curriculum.

Forty participants will be accepted, who will work in four independent groups.

The deadline for submissions is June 15.

For more information, visit the ILAE website.

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Immunotherapy and new onset refractory status epilepticus

We are pleased to share information regarding newly published review article on the role of immunotherapy in managing new onset refractory status epilepticus. The article, titled “Second-line Immunotherapy in New Onset Refractory Status Epilepticus” by Aurélie Hanin, Eyal Muscal, Lawrence J. Hirsch, was released on March 2 in the journal Epilepsia. This publication comes highly recommended by the ILAE for its insightful contributions to the field.